Comments for Freedom From ME Blog

Comment on CFS and ME treatment: Stomach Acid Transcript by Freedom From ME Blog » Alex wants your feedback!

Freedom From ME Blog » Alex wants your feedback! — Sat, 04 Sep 2010 22:20:15 +0000

[...] acid in supporting digestion and absorption in ME and CFS treatment. You can read the transcript here, and watch the original video [...]

Comment on Video Blog: Chronic Fatigue Syndrome: IBS psychology and physiology by Angel

Angel — Wed, 28 Jul 2010 06:03:14 +0000

Interesting blog BUT couldn’t hear the questions! Some questions appeared in sub-titles which was vey useful but not all of them

Comment on Video Blog: The delayed fatigue response in M.E., C.F.S. and Fibromyalgia explained by Jane Burdock

Jane Burdock — Thu, 15 Jul 2010 13:58:24 +0000

Your video was interesting, however I want to tell people that there is a very good book called “Coping with Chronic Fatigue” by Trudi Chalder pub. by Sheldon Press. From Kings College Hospital London it explains how to pace yourself and how to use mental techniques to overcome anxiety. I learnt that if I focused on my symptoms it made them worse. If I had read the book when I was first ill I don’t think I would have had the relapses. [I also realised part of my problem was I was a perfectionist]
Kind Regards
Jane Burdock

Comment on Video Blog: The delayed fatigue response in M.E., C.F.S. and Fibromyalgia explained by Tanya

Tanya — Thu, 08 Jul 2010 14:36:36 +0000

Hi Trevor,

Thanks for your interest and for commenting. I think you’ll find I actually said “dri” phosphate – definitely a slip of the tongue, as “di” was of course the intention as you and I’m sure most people realised! I think it was all the excitement of knocking balls about the room that challenged my tongue! We kept it in as we felt the rest of the video worked well (it was filmed several times due to ball skills failure!) and it wasn’t misleading in the context of the rest of the video. And looking at my mouth shape I didn’t say hit the “ball” but either way I’m sure this didn’t detract from the overall meaning and understanding of the video.

We always aim to present these topics as clearly as possible, and we wouldn’t put out one that didn’t make technical sense. We do strive to be better every time we do them so hopefully somewhere down the line will will have totally honed our presenting skills!

Please bear with us until then

Comment on Video Blog: The delayed fatigue response in M.E., C.F.S. and Fibromyalgia explained by Trevor

Trevor — Fri, 02 Jul 2010 12:25:45 +0000

Just found this blog: if only I’d found it yesterday evening, I wouldn’t have lugged that watering can around!

It gives a great psychological boost just to know this and to have something positive to test for and to aim for.

But it would also help M.E. sufferers, who assume that all lack of understanding is down to their lack of brainpower, to realise that everyone can make mistakes, ill or not. When Tanya pulls the first phosophorus ping-pong ball off the ATP molecule to convert it to ADP, she clearly says “tri-phosphate” instead of “di-phosphate”. Sorry Tanya, you’re caught on video and I replayed it 3 or 4 times to make sure!

Also, the expression “hit the ball” is probably meant to be “hit the wall”, which occurs shortly thereafter.

I also had to replay the last words of Alex several because I couldn’t understand what sounded like “fiftina chats”, but the small window top-right sorted that one out.

Comment on Video Blog: Relating to symptoms in ME and CFS by chris

chris — Fri, 25 Jun 2010 20:24:38 +0000

Excellent stuff. I’ve seen a lot on this subject but must say I think you guys are so on point with what your saying here. Definately onto something. Glad I found your site.Im also understanding more and more how psychology is so relevant with this.

Comment on Video Blog: CFS and ME Recovery – 3 types of anxiety by Helen Smith

Helen Smith — Wed, 09 Jun 2010 18:04:14 +0000

This is a very interesting topic and I can relate to the three types of anxiety but have most difficulty in a situation expressing myself within a group (although I am told I am very articulate and other people don’t see this anxiety) but feel an inner anxiety about the situation and feel the symptoms expressed in my body. Would welcome a way of combatting this, although my Adrenal system is becoming stronger with support from the clinic and the wired state is diminishing.

Comment on Video Blog: CFS and ME Recovery – 3 types of anxiety by emma tierney

emma tierney — Wed, 09 Jun 2010 16:06:10 +0000

Really helpful, interesting video on three different types of anxiety. It is something I’ve discovered myself over the past few weeks… I’m sure it will help lots of people.

Comment on Video Blog: CFS and ME Recovery – 3 types of anxiety by Sofa Karen

Sofa Karen — Tue, 08 Jun 2010 17:01:07 +0000

I found this video on the different types of stress really interesting. I definitely do head driven stress! I have had M.E. for 6 years and have always been drawn to the psychological therapies that are on offer.

A long the way I have tried Lightning Process, Gupta, EFT, some things with OHC and Sarah (Hi Sarah!) and they have all been really helpful at reducing the stress cycle around being ill. However, I have found that hypnotherapy has been the most powerful. Maybe some of my thoughts around being ill had become too deeply entrenched.

I have just started blogging (so excuse me for a little self promotion!) but I’ve just written a piece on hypnotherapy that people may be interested in.

http://sofaandthecity.blogspot.com/2010/06/you-need-to-speak-to-boss.html

Comment on Video Blog: Relating to symptoms in ME and CFS by Lynne

Lynne — Fri, 04 Jun 2010 19:43:31 +0000

This was really well explained – symptoms and our reactions to them, not trying to change the symptom but just letting it be , a good reminder from the 90DP, thanks.