Video Blog: The delayed fatigue response in M.E., C.F.S. and Fibromyalgia explained

Welcome to this week’s video blog! We were very excited to see that last week’s video blog on the adrenals with Amy Pamment from our nutrition team is already our most popular video to date with over 525 views in the first week! We have a feeling that this week’s video with Tanya Page from our nutrition team explaining mitochondrial function will be equally popular. In addition to a very simple explanation of the delayed fatigue response experienced with M.E., it also involves Alex hitting ping pong balls at the camera person – it will make sense when you watch it!

8 Comments

• 

  By Torski, November 24, 2009 @ 1:13 pm

  Excellent explanation

• 

  By Kerrie, November 24, 2009 @ 9:12 pm

  Hi tanya

  Got to see you explain it in person, finally!! Well done great explanation made more sense to see it with the balls!

  Kerrie

• 

  By Sarah, November 25, 2009 @ 4:26 pm

  This and and the adrenal video before it are really clearly explained and will be useful for my parents to watch so they can understand what I probably don’t explain properly! So, thank you.

  Sarah

• 

  By Helen Smith, December 2, 2009 @ 11:42 pm

  Hi Tanya
  It’s just nice to see you. There’s a great deal of controversy surrounding Mitochondrial dysfunction but it’s gaining credence.
  Helen

• 

  By Lucy, March 27, 2010 @ 5:00 pm

  Hi
  Makes sense to me. (I did LP, and they said delayed fatigue happens due to adrenalin poisoning, but that didn’t seem right somehow.) I really relate to the stuff on helper/achiever tendencies leading to pushing the mitochondria too far. I developed ME about the same time I was pushing myself to socialise all night, and also pushing myself with my GCSEs.
  I’m really glad I found this site. (LP and Reverse Therapy made partial sense and helped somewhat, but all this stuff makes TOTAL sense. Yayness!)

• 

  By Trevor, July 2, 2010 @ 1:25 pm

  Just found this blog: if only I’d found it yesterday evening, I wouldn’t have lugged that watering can around!

  It gives a great psychological boost just to know this and to have something positive to test for and to aim for.

  But it would also help M.E. sufferers, who assume that all lack of understanding is down to their lack of brainpower, to realise that everyone can make mistakes, ill or not. When Tanya pulls the first phosophorus ping-pong ball off the ATP molecule to convert it to ADP, she clearly says “tri-phosphate” instead of “di-phosphate”. Sorry Tanya, you’re caught on video and I replayed it 3 or 4 times to make sure!

  Also, the expression “hit the ball” is probably meant to be “hit the wall”, which occurs shortly thereafter.

  I also had to replay the last words of Alex several because I couldn’t understand what sounded like “fiftina chats”, but the small window top-right sorted that one out.

• 

  By Tanya, July 8, 2010 @ 3:36 pm

  Hi Trevor,

  Thanks for your interest and for commenting. I think you’ll find I actually said “dri” phosphate – definitely a slip of the tongue, as “di” was of course the intention as you and I’m sure most people realised! I think it was all the excitement of knocking balls about the room that challenged my tongue! We kept it in as we felt the rest of the video worked well (it was filmed several times due to ball skills failure!) and it wasn’t misleading in the context of the rest of the video. And looking at my mouth shape I didn’t say hit the “ball” but either way I’m sure this didn’t detract from the overall meaning and understanding of the video.

  We always aim to present these topics as clearly as possible, and we wouldn’t put out one that didn’t make technical sense. We do strive to be better every time we do them so hopefully somewhere down the line will will have totally honed our presenting skills!

  Please bear with us until then

• 

  By Jane Burdock, July 15, 2010 @ 2:58 pm

  Your video was interesting, however I want to tell people that there is a very good book called “Coping with Chronic Fatigue” by Trudi Chalder pub. by Sheldon Press. From Kings College Hospital London it explains how to pace yourself and how to use mental techniques to overcome anxiety. I learnt that if I focused on my symptoms it made them worse. If I had read the book when I was first ill I don’t think I would have had the relapses. [I also realised part of my problem was I was a perfectionist]
  Kind Regards
  Jane Burdock

Other Links to this Post

RSS feed for comments on this post. TrackBack URI

Leave a comment